Rare Disease Day at NIH (https://ncats.nih.gov/rdd), will be held this year on February 28, 2019, from 8:30 am to 4:00 pm in the Main Auditorium of the Natcher Conference Center, Bldg. #45, on the main NIH campus in Bethesda, Maryland. The center will open at 7:30 am for registration and poster/booth setup. The event is free, but pre-meeting registration is requested (https://events-support.com/events/Rare_Disease_Day/page/1960). The event is open to the public, including patients, patient advocates, health care providers, industry representatives, and government employees. In association with Global Genes®, participants are encouraged to wear their favorite pair of jeans. The aims of Rare Disease Day at NIH 2019 are to raise awareness about rare diseases, about the people they affect and NIH research collaborations under way to address scientific challenges, and to advance new treatments. The goals are to: demonstrate the NIH commitment to helping people with rare diseases through research; highlight NIH-supported rare diseases research and the development of diagnostics and treatments; initiate a mutually beneficial dialogue among public and private researchers, patients, patient advocates, and policymakers; exchange the latest rare diseases information with stakeholders to advance research and therapeutic efforts; and to put a face on rare diseases by sharing stories of patients, their families, and their communities.
Login Or Register To Read Full Story