Rare Disease Day at NIH February 29—Free In-Person and Also Webcast

Rare Disease Day® takes place worldwide, typically on or near the last day of February each year, to raise awareness among policymakers and the public about rare diseases and their impact on patients’ lives. Since 2011, the NIH Clinical Center and the National Center for Advancing Translational Sciences (NCATS) have sponsored Rare Disease Day at NIH as part of this global observance. Rare Disease Day at NIH aims to raise awareness about rare diseases, the people they affect, and NIH collaborations that address scientific challenges and advance research for new treatments. See the event agenda here. You may register for free here. New NIH Director Monica M. Bertagnolli, MD, is scheduled to speak at 10:55 EST. Sen. Amy J. Klobuchar (D-MN) will speak via video at 9:20 am EST. Families affected by rare diseases will be sharing their experiences throughout the day. Please refer to the full agenda to see the wealth of experience, concern, and effort that are taking place in the Rare Disease arena and will be on display during the full day of moving sessions.

Event Details—Free to Public and Will Also Be Webcast

Rare Disease Day at NIH will be held at the NIH Main Campus (Natcher Conference Center) on Thursday, Feb. 29, 2024, from 9 a.m. to 5 p.m. EST. There will also be a virtual livestream via NIH VideoCast with the event archived for replay afterward. The event agenda will feature panel discussions, rare diseases stories, in-person exhibitors and scientific posters, and an art exhibition. The event is free and open to the public.

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