FEATURE: CEO of Chronic Fatigue Syndrome Advocacy Group Is Paradoxical Ball of Productive Energy

On first meeting Carol Head (photo) (https://www.youtube.com/watch?v=kQwUmoAKUic) there are many things that you would not likely guess right away. You would not guess, for instance that she was VP of the Organizing Committee for the 1984 Summer Olympics in Los Angeles. You would also likely not guess that she had spent eight years in a variety of executive positions at the LA Times. And most of all, you would never guess that she suffers from the debilitating energy-sapping disease commonly known as chronic fatigue syndrome (CFS). (Patients prefer to call the disease M.E. for myalgic encephalomyelitis and, as a result, the disease has recently been re-named to myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).) [For more information on this disease, please go to this web site (http://solvecfs.org)]. But Carol does have this debilitating disease and, for the last three years, this paradoxically dynamic woman has served as CEO and President of the increasingly effective Solve ME/CFS Initiative (SMCI) (http://solvecfs.org/), the primary research and advocacy organization for ME/CFS patients in the United States and an international leader in biomedical research for the disease. For the work she is doing with SMCI, Carol was recently recognized as one of fourteen Health Heroes for 2017 in Oprah Winfrey’s O Magazine (http://www.oprah.com/health_wellness/o-magazines-2017-health-heroes). In 2015, Francis Collins (https://en.wikipedia.org/wiki/Francis_Collins), M.D. Ph.D., Director of the National Institutes of Health (NIH) and former Director of the National Human Genome Research Institute (NHGRI), and leader of the Human Genome Project said, “Of the many mysterious illnesses that science has yet to unravel, ME/CFS has proven to be one of the most challenging.”
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